Since November, Ms Schröder has been conducting a large-scale study as part of her doctoral thesis project, with the aim of making the commitment and idea development of people with rare diseases and their relatives visible.
The project is led by Annika Schröder, a PhD student at the University of Potsdam and mother of two children, one with and one without a rare disease.
Since November, Ms Schröder has been conducting a large-scale study as part of her doctoral thesis project, which aims to make visible the commitment and development of ideas of people with rare diseases and their relatives.
For participating, for each completed questionnaire, 2€ will be donated to an organisation that also aims to support people with rare diseases.
The study can be accessed at the following link: https://www.soscisurvey.de/patientinnovator/
If you are further interested, you can find an overview of the entire research project on university homepage: https://hpi.de/hoelzle/projekte/patienten-paralympioniken-patientencommunities.html